Background: Children with medical complexity (CMC) are a growing pediatric population with disproportionately high health needs and costs often insured by Medicaid. Identification of CMC using complexity classification systems applied to population-level data and establishment of baseline patterns of population-level health care utilization are essential to target patients who may benefit most from complex care [...]

Background: Family Partners (FP) are peer mentors trained to support parents facing clinical situations similar to what FPs previously experienced with their own children. FPs offer a family-centered, cost-effective intervention that can improve outcomes, particularly for children with prematurity or chronic diseases. Children with medical complexity (CMC) are a high need, high cost population with [...]

Case Presentation: A 2-year-old girl with a past medical history of hypertension and anterior mediastinal mass of unclear etiology presents to the ED with acute bruising. 2 months prior, she was admitted to PICU for fever and lethargy, AKI, hyperuricemia and electrolyte abnormalities concerning for tumor lysis syndrome (TLS), and was found to have a [...]

Background: Caregivers of Children with Medical Complexity (CCMC) are essential to their child’s care during hospital admissions. Prior research suggests that prolonged hospitalization of their child negatively impacts the emotional, physical and psychosocial well-being of CCMC. However, there is a paucity of data regarding caregivers’ perspectives on potential effective solutions to improve their own wellness [...]